Yesterday was a day full of appointments, questions, answers, and information.
We were told that all of my scans appear to be unchanged which means they didn’t see any metastases! And my echocardiogram showed my heart function went up so there’s no damage from the doxorubicin! These were our two biggest concerns so getting this news was a huge burden lifted from our shoulders. The potential cardiac toxicity that the literature says doxorubicin can cause was alarming. Then, when we sought an opinion at Dana Farber in Boston right after the diagnosis, the medical oncologist scared us by implying that I might not survive this regimen with a healthy heart, even mentioning fatal heart failure. Dr Ravi was confident I would make it through without any issues but having the real test finally puts our minds at ease.
After speaking with the surgeon and radiation oncologist, the tentative plan moving forward would be to finish up the current chemotherapy, give my body a rest for about 4 weeks, then begin a 5 week long radiation regimen (it would begin some time in mid-March). After radiation, another 4ish weeks of rest and the surgery in May. Then healing time and the remaining 6-7 months of a different chemotherapy.
I have some decisions to make regarding surgery and the timing of reconstruction if I want it. There are a decent number of factors to consider but I have some time to decide.
I like the feeling of knowing what comes next and who will be in my corner for the next steps. Having even the generalized timeline is helping relieve some of the anxiety of the unknown I was feeling.
For now, I’m just going to focus on finishing these last two rounds. And I’m going to do it with a smile. Because I’ve got all of you behind me, giving me strength to be a badass cancer fighting machine. So, yeah, that red stuff in the photo may try to beat me down as it works against the angiosarcoma, but I’m just gonna sit here laughing and playing a game with my #1 like I’m not sitting in a hospital bed.

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