We’re on the final flight back to Albany and I realized it’s been quite a few days since I last focused on where I’m at in this journey.
4 out of 6 cycles. Done. And I’d like to think despite the few side effects, that I handled them well. I know transfusions are probably in my future again this time around but I know what to expect. And they’re just another tool in my medical team’s arsenal to help me fight this thing.
Next time, along with scans and our appointment with Dr. Ravi, we will meet with the radiation oncologist and surgeon to talk about next steps. We are not yet sure what exactly the path beyond chemo looks like. We should have a much better understanding (and a timeline?) after the next trip.
Caleb and I sometimes forget that nothing about this is guaranteed. We took the aggressive approach with Dr. Ravi so we could utilize all the ways we could attack the cancer because it is just that: an aggressive cancer that is trying to take me out of this world. What angiosarcoma didn’t know is that I’m WAY more aggressive and determined to stay. There’s no certainty that I’ll prevail but I’d like to think my tenacity gives me one heck of an edge. Add the best angiosarcoma doctor in the country to everything we are throwing at it, and it leaves me feeling very hopeful. Ever cautious but ALWAYS hopeful.
I was able to meet a friend in person for the first time this trip. A friend I met on Facebook who, although some weeks ahead of me and on a slightly different path, understands what it is like to be facing angiosarcoma; she has the same exact diagnosis and is also seeing Dr. Ravi. She, like me, seems to have quite the support system rallying behind her and I’m so happy that she does. We were able to exchange information, commiserate a little about side effects, and just enjoy meeting someone who truly gets what we are up against. I hope that we can be a shoulder for the other in times where no one else gets it.
But I will also still rely upon you and all of your love, hope, and prayers that have lifted me up and carried me this far.
Today I celebrate going home. But I will always celebrate and be grateful for the immense support I’ve received in the last few months.
It’s been 3 months since Caleb and I received the diagnosis that will forever change our world. But it’s also been three months since our world was also filled with so much love that there isn’t enough room for fear to take hold.
For now, we steam ahead and keep doing what we’re doing!

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